Principles of Care for Acquired Hemophilia

Forskningsoutput: TidskriftsbidragArtikel i vetenskaplig tidskrift

Abstract

OBJECTIVE: To establish clear priorities for the care of patients with acquired hemophilia A (AHA) by proposing 10 key principles of practical, holistic AHA management.

METHOD: These principles were developed by the Zürich Haemophilia Forum, an expert panel of European hemophilia specialists comprising physicians and nursing and laboratory specialists.

RESULTS: The 10 proposed principles for AHA care are as follows: 1) Improving initial diagnosis of AHA; 2) Differential diagnosis of AHA: laboratory assessment of patients with unusual bleeding; 3) Effective communication between laboratories, physicians, and specialists; 4) Improving clinical care: networking between healthcare professionals in the treating hospital and specialist hemophilia centers; 5) Comprehensive assessment of bleeding; 6) Appropriate use of bypassing agents; 7) Long-term follow-up and monitoring for efficacy and safety of immunosuppressive treatment; 8) Inpatient/outpatient settings; 9) Access to innovative and disruptive treatments; 10) Promotion of international collaborative research.

CONCLUSION: The proposed principles for holistic AHA care aim to ensure swift diagnosis and optimal patient management. Key to achieving this goal is training for healthcare personnel in non-specialist hospitals and collaboration between different specialists. We hope these principles will increase awareness of AHA in the wider medical community and catalyze efforts towards improving its practical, multidisciplinary management.

Detaljer

Författare
  • Gerry Dolan
  • Gary Benson
  • Annette Bowyer
  • Hermann Eichler
  • Cedric Hermans
  • Victor Jiménez-Yuste
  • Rolf Ljung
  • Debra Pollard
  • Elena Santagostino
  • Silva Zupančić Šalek
Enheter & grupper
Externa organisationer
  • St Thomas' Hospital
  • Belfast City Hospital
  • Royal Hallamshire Hospital
  • Saint-Luc University Hospital
  • Maggiore Hospital Policlinico
  • University of Osijek
  • Saarland University Hospital
  • Autonomous University of Madrid
  • NHS Foundation Trust
Forskningsområden

Ämnesklassifikation (UKÄ) – OBLIGATORISK

  • Hematologi
Originalspråkengelska
TidskriftEuropean Journal of Haematology
StatusE-pub ahead of print - 2021 feb 1
PublikationskategoriForskning
Peer review utfördJa