The Meaning of Being a Living Kidney, Liver, or Stem Cell Donor - A Meta-Ethnography

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Background Studies on living donors from the donors' perspective show that the donation process involves both positive and negative feelings involving vulnerability. Qualitative studies of living kidney, liver, and allogeneic hematopoietic stem cell donors have not previously been merged in the same analysis. Therefore, our aim was to synthesize current knowledge of these donors' experiences to deepen understanding of the meaning of being a living donor for the purpose of saving or extending someone's life. Methods The meta-ethnography steps presented by Noblit and Hare in 1988 were used. Results Forty-one qualitative studies from 1968 to 2016 that fulfilled the inclusion criteria were analyzed. The studies comprised experiences of over 670 donors. The time since donation varied from 2 days to 29 years. A majority of the studies, 25 of 41, were on living kidney donors. The synthesis revealed that the essential meaning of being a donor is doing what one feels one has to do, involving 6 themes; A sense of responsibility, loneliness and abandonment, suffering, pride and gratitude, a sense of togetherness, and a life changing event. Conclusions The main issue is that one donates irrespective of what one donates. The relationship to the recipient determines the motives for donation. The deeper insight into the donors' experiences provides implications for their psychological care.


Enheter & grupper
Externa organisationer
  • Skåne University Hospital
  • University of Borås
  • University College West
  • Sahlgrenska University Hospital
  • Göteborgs universitet
  • South Elfsborg Hospital
  • Queen Silvia Children’s Hospital

Ämnesklassifikation (UKÄ) – OBLIGATORISK

  • Annan hälsovetenskap
Sidor (från-till)744-756
Antal sidor13
StatusPublished - 2018 maj 1
Peer review utfördJa