The Swedish Neonatal Quality Register – contents, completeness and validity

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Abstract

Aim: To describe the Swedish Neonatal Quality Register (SNQ) and to determine its completeness and agreement with other registers. Methods: SNQ collects data for infants admitted to neonatal units during the first four postnatal weeks. Completeness and registers’ agreement were determined cross-linking SNQ data with Swedish population registers (the Inpatient, Medical Birth and Cause of Death Registers) for a study period of five years. Results: In total, 84 712 infants were hospitalised. A total of 52 806 infants occurred in both SNQ and the population registers; 28 692 were only found in the population registers, and 3214 infants were only found in SNQ. Between gestational weeks 24–34, completeness of SNQ was 98–99%. Below and above these gestational ages, completeness was lower. Infants missing in SNQ were term or near-term in 99% of the cases, and their diagnoses indicated conditions managed in maternity units, or re-admissions for acute infections, managed in paediatric units. For most diagnoses, the agreement between SNQ and population registers was high, but some (bronchopulmonary dysplasia and grade of hypoxic-ischaemic encephalopathy) were often missing in the population registers. Conclusion: SNQ completeness and agreement against other registers, especially for preterm infants, is excellent. SNQ is a valid tool for benchmarking, quality improvement and research.

Detaljer

Författare
  • The SNQ Collaboration
  • Mikael Norman
  • Karin Källén
  • Erik Wahlström
  • Stellan Håkansson
Enheter & grupper
Externa organisationer
  • Karolinska Institute
  • Karolinska University Hospital
  • Socialstyrelsen / Swedish National Board of Health and Welfare
  • Umeå University
Forskningsområden

Ämnesklassifikation (UKÄ) – OBLIGATORISK

  • Pediatrik
  • Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi

Nyckelord

Originalspråkengelska
TidskriftActa Paediatrica, International Journal of Paediatrics
StatusE-pub ahead of print - 2019 apr 24
PublikationskategoriForskning
Peer review utfördJa