Under-reported relationship: a comparative study of pharmaceutical industry and patient organisation payment disclosures in the UK (2012-2016)

Forskningsoutput: TidskriftsbidragArtikel i vetenskaplig tidskrift


Objectives To examine the under-reporting of pharmaceutical company payments to patient organisations by donors and recipients. Design Comparative descriptive analysis of payments disclosed on drug company and charity regulator websites. Setting UK. Participants 87 donors (drug companies) and 425 recipients (patient organisations) reporting payments in 2012-2016. Main outcome measures. Number and value of payments reported by donors and recipients; differences in reported payments from/to the same donors and recipients; payments reported in either dataset but not the other one; agreement between donor-recipient ties established by payments; overlap between donor and recipient lists and, respectively, industry and patient organisation data. Results. Of 87 donors, 63 (72.4%) reported payments but 84 (96.6%) were mentioned by recipients. Although donors listed 425 recipients, only 200 (47.1%) reported payments. The number and value of payments reported by donors were 259.8% and 163.7% greater than those reported by recipients, respectively. The number of donors with matching payment numbers and values in both datasets were 3.4% and 0.0%, respectively; for recipients these figures were 7.8% and 1.9%. There were 24 and 3 donors missing from industry and patient organisation data during the entire study period, representing 38.1% and 3.6% of those in the respective datasets. The share of donor-recipient ties in which industry and patient organisation data agreed about donors and recipients was 38.9% and 68.4% in each dataset, respectively. Of 63 donors reporting payments, only 3 (4.8%) had their recipient lists fully overlapping with patient organisation data. Of 200 recipients reporting industry funding, 102 (51.0%) had their donor lists fully overlapping with industry data. Conclusions. Both donors and recipients under-reported payments. Existing donor and recipient disclosure systems cannot manage potential conflicts of interest associated with industry payments. Increased standardisation could limit the under-reporting by each side but only an integrated donor-recipient database could eliminate it.


Enheter & grupper
Externa organisationer
  • Syreon Research Institute
  • University of Bath

Ämnesklassifikation (UKÄ) – OBLIGATORISK

  • Sociologi (exklusive socialt arbete, socialpsykologi och socialantropologi)
  • Farmaceutisk vetenskap
Sidor (från-till)1-11
TidskriftBMJ Open
Utgåva nummer9
StatusPublished - 2020 sep 20
Peer review utfördJa

Relaterad forskningsoutput

Piotr Ozieranski, Emily Richard & Shai Mulinari, 2019 maj 23, I: BMJ: British Medical Journal. 365, l1806 .

Forskningsoutput: TidskriftsbidragArtikel i vetenskaplig tidskrift

Emily Richard, Piotr Ozieranski & Shai Mulinari, 2019, I: Health Policy. 123, 12, s. 1244-1250

Forskningsoutput: TidskriftsbidragArtikel i vetenskaplig tidskrift

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Related projects

Shai Mulinari, Piotr Ozieranski & Lawrence King

Swedish Council for Working Life and Social Research (Forte)


Projekt: ForskningIndividuellt forskningsprojekt

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