CPNorth - Living life with cerebral palsy in the Nordic countries?

  • Alriksson-Schmidt, Ann (PI)
  • Ahonen, Matti (Forskare)
  • Jeglinsky-Kankainen, Ira F.D. (Forskare)
  • Hägglund, Gunnar (Forskare)
  • Jarl, Johan (Forskare)
  • Asuman, Derek (Forskarstuderande)
  • Andersen, Guro (Forskare)
  • Hollung Julsen, Sandra (Forskare)
  • Steskal, Darina (Forskare)
  • Moller Madsen, Bjarne (Forskare)
  • Nordbye-Nielsen, Kirsten (Forskare)
  • Kedir, Abdu (Forskare)
  • Tresoldi, Ilaria (Forskare)
  • Keski-Säntti, Markus (Forskare)
  • Gissler, Mika (Forskare)
  • Laufey Asgeirsdottir, Tinna (Forskare)
  • Jonsdottir, Gudny (Forskare)
  • Eggertsdottir, Gudbjörg (Forskare)
  • Stockman, Jessica (Forskarstuderande)

Projekt: Forskning




Populärvetenskaplig beskrivning

Cerebral pares (CP) is the most common childhood disability although most persons with CP is actually adults. How persons with CP fare in life in terms of health, quality of life, education, employment and income is virtually unknown. Parents to children (both young and grown-ups) are under great strain, both emotionally and practically, with added burden especially related to informal care. Likewise to the person with CP, very little is known about how parents fare, for example in terms of health, stress, employment and income. Although the Nordic countries are known for their strong welfare systems, it is unknown to which extent the added burden related to disability are compensated for. It is known that many parents have to reduce work hours to care for their child with CP. Is it possible that families with a person with CP are more likely to suffer economic hardship or even disability-related poverty?
CP-North is a research project that will combine health and registers data from all Nordic countries in order to create the world’s largest dataset of both persons with CP, their parents, and controls from the general population. Studying the issues described above is expected to influence not only how the social support systems in the Nordic countries are constructed but also how the health care are organized for this patient group. It will also be of interest to the international community as the size of the data set and the richness of Nordic registers will allow CP-North to investigate questions that cannot be studied elsewhere. In addition, by focusing on differences in social support and health care between the Nordic countries, CP-North will also capture Nordic experiences on successful and unsuccessful policies for the group, allowing the countries to learn from each other.
CP-North is a joint collaboration across all Nordic countries and across a number of disciplines and includes physicians, physio therapists, health economists and researchers specialized in public health.
Kort titelCPNorth
Gällande start-/slutdatum2017/09/01 → …