TY - JOUR
T1 - The National Spina Bifida Program transition initiative
T2 - the people, the plan, and the process
AU - Thibadeau, Judy K.
AU - Alriksson-Schmidt, Ann
AU - Zabel, TA
PY - 2010
Y1 - 2010
N2 - This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.
AB - This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.
KW - Comprehensive Health Care/organization & administration
KW - Continuity of Patient Care/organization & administration
KW - Humans
KW - Models, Organizational
KW - Program Evaluation/methods
KW - Quality of Health Care
KW - Spinal Dysraphism/therapy
KW - Systems Integration
U2 - 10.1016/j.pcl.2010.07.010
DO - 10.1016/j.pcl.2010.07.010
M3 - Article
C2 - 20883880
SN - 0031-3955
VL - 57
SP - 903
EP - 910
JO - Pediatric Clinics of North America
JF - Pediatric Clinics of North America
IS - 4
ER -